Canadian Lung Association Blog

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Barbara’s Story: With their future uncertain, Barbara and partner Martin hold out hope for a lung transplant

Barbara Deglau - ipf

Barbara and Martin met five years ago as most people do these days – online. One coffee date and the two knew it was a match. Each had already lived a lifetime of challenge, struggle, and loss, often putting their own lives on hold to support a loved one. Together, they planned to live out their retirement years doing the things that they love.  Barbara’s slight cough and a monitor attached to her index finger however suggest a different story is unfolding. “I’ve had a lung problem for a long time,” she says. The petit 66-year-old has a youthful quality that

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Posted in Lung Health, Pulmonary fibrosis, Stories

Dr. Nasreen Khalil’s Story: A life dedicated to unravelling the mystery of a little known, lethal lung disease

Dr. Khalil's Story - IPF

Currently based at the University of British Columbia Dr. Khalil has dedicated much of her life’s work to understanding and treating IPF, raising the profile of the disease, and obtaining much-needed research funding. It was during her respirology fellowship some 20 years ago that Dr. Khalil first became captivated by IPF.  Previously viewed as an inflammatory disease similar to asthma or COPD, Dr. Khalil andher team discovered that IPF is actually a disease of the lung tissue. “This disease is insidious,” explains Dr. Khalil. “Many people cannot pinpoint exactly when they noticed becoming short of breath – usually when doing regular

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Posted in Pulmonary fibrosis, Research, Stories

Darcy’s Story: At age 54 I was diagnosed with IPF, and would need a lung transplant to survive

Darcy's Story

Darcy Murdoch has played many roles in his life as an entertainer. An average encounter finds him effortlessly riffling between two of his alter egos, crooner Bobby Bacchus, and the King himself, Elvis Presley. But no role has challenged him more than that of patient. Years of long days and late nights working in the catering business, rich meals at odd hours and constant heavy lifting were affecting Darcy Murdoch’s health. The former smoker was used to feeling out of breath, but when he began to wheeze and cough more frequently, he knew it was something more. His doctor suspected

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Andy’s Story: At first I was treated for pneumonia – it took 6 months before I was diagnosed with IPF

Andy's Story

Ski enthusiasts, Andy and Suzanne Parton were usually the first ones up the mountain on any given ski holiday, but that all changed in December 2011. Andy said, “I will never forget that day on the ski hill. I thought I must have a bug or something. I was exhausted after just a few ski runs. Once we got home, I started coughing. Soon I was coughing every second, day and night.” “At first Andy was treated for pneumonia, but his condition didn’t improve. It took six months before they told us Andy he had IPF,” said Suzanne. Because it

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Garth’s Lung Story

Garth

No one ever told me that smoking could lead to COPD!  I used to see those charts on my doctors wall saying that if I quit….over time….my lungs could return to normal ! Unfortunately, this is not always true and so after smoking for 30 years, I’m told that I have COPD with a combination of Emphysema and Pulmonary Fibrosis. This was in August of 2011. For the first couple of years, life was not much different….other than some shortness of breath when I walked up hill or lifted something heavy.  I had a flare-up in Florida in the winter of 2013

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Posted in Pulmonary fibrosis, Stories, Uncategorized

Guest post from Nicole Nelson: Let’s talk organ donation.

Nicole Nelson1

Hello, my name is Nicole and I have familial pulmonary fibrosis.  As of day one of my diagnosis, I knew that a lung transplant was going to be my only treatment option.  My shortness of breath was manageable until the summer of 2013 when I had to be put on oxygen therapy to keep my oxygen saturation levels in their normal range.  My respirologist then started  the process of getting me on the transplant list.  In January 2014, I was fortunate to go to Edmonton for the transplant team’s 6 week program.  There we did physiotherapy Monday to Friday, met

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Jacqui’s Journey with IPF: Whoopi!

Portable oxygen concentrators

My doctor started me on oxygen therapy a year ago because I had low oxygen saturation levels on exertion. Shortness of breath, coughing, struggling to catch my breath, fatigue and weakness were other symptoms I suffered with.  The oxygen supply company  came and set me up with the following supplies : Oxygen concentrator that stays inside our home. Large liquid oxygen tank.  The tank is filled once a week with oxygen. Portable liquid oxygen tanks. I fill a portable  liquid oxygen tank from the large liquid oxygen tank to use when I go out. I have nasal cannulas, connectors and oxygen tubing to

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Jacqui’s Journey with Pulmonary Fibrosis

Jacqui Bowick
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Posted in Pulmonary fibrosis, Stories